Latest news

11
Nov 2019

Shortage of critical drug in the US

newsThere's a critical shortage in the U.S. of a drug used to treat childhood cancers such as leukemias and lymphomas after one of the only two U.S. manufacturers decided to discontinue its production this summer.

The FDA, however, had resumed the medication in October, because of its short supply, it is predicted to last only till the end of 2019.

The drug is called vincristine, and it's not only involved in the treatment of the disease but also in managing the side effects of other drugs. Not having a necessary supply of such an essential drug could decrease the children's chances of going into remission and could even increase the chances of relapse and cancer to return.

Read on for some more details published on Forbes.com

21
Jan 2018

The latest trends in cancer research

2018 brings along some exciting and new developments in cancer research and treatment.

Forbes has gathered a list of what we can expect from less chemotherapy and increased attention on patients to the use of artificial intelligence.

Another promising key method in treating childhood cancer, especially leukemia, is CAR T immunotherapy. It recently (August 2017) received FDA approval as a treatment for certain types of acute lymphoblastic leukemia (ALL). Throughout the trials, 93% of patients reached remission.

But how does it work?

T cells are a type of white blood cells that see viruses in the body and fight infection. However, they can't identify cancerous cells. So, here's when the modification comes in play.

T cells of the child are collected and genetically modified with the addition of the chimeric antigen receptor (CAR). The child then receives these genetically modified T cells that now can find the hiding cancer cells and work to destroy them without harming the healthy cells, which is the most important reason for immunotherapy — to only kill cancer cells and not the healthy ones.

There are some very interesting points to look at and hopefully these and additional advancements will help cancer treatments become less harmful and more effective in the future.
04
Nov 2017

He'll soon be walking without an aid

newsRicsi's Santa came early this year and brought him a new pair of TheraTogs. He is now wearing his newest walking aid system, and if his hip and knee joints continue to develop as well as they have been, soon he won't need them at all.

His mother told us that with the aid of this Orthotic System, his legs are getting stronger, and he’ll soon drop one of the canes and use only one to walk with. As he’s growing taller, he’s needed new ones every year and we’ve been there for him for more than 3 years now.

It’s so heart-warming to hear that his walking abilities are beautifully improving. We’re so happy we could help him in his journey.
11
Dec 2016

Girl's leg saved despite horrifying diagnosis

newsA 14-year-old girl’s letter to our Hungarian parent company in Budapest:

“Dear Foundation,
Please help me save my leg from getting amputated!
Petra”


Petra P. was diagnosed with bone cancer in his left leg in 2013. She received chemotherapy treatment in Budapest, Hungary, but the aggressive tumor recurred and she was starting to lose hope.

Reports written by oncologists and doctors revealed that due to the place of the tumor, the only option was below mid-thigh amputation.

This “solution” shocked the girl and her family, and they couldn’t and wouldn’t accept amputation as an option to beat cancer. There has to be a place in the world, where, with some technology, Petra’s leg can be saved. Therefore, they started a thorough research, which seemed to have paid off.

An orthopedic surgeon at a private clinic in Brașov, Romania offered to help. He ordered a conference with his colleagues and surgeons, who specialize in vascular surgery, and decided to move forward and perform the leg-saving surgery. There was only one thing missing yet: the money.

Although, the team of surgeons stepped back from receiving their compensation, the family still had to pay close to 1.5 million Hungarian Forints (more than $5,000) for hospital expenses. This amount was far beyond what the family could afford.

Their only hope was with the Children Cancer Foundation in Budapest, Hungary. The foundation has previously provided them with significant financial assistance throughout Petra’s treatments.
In her request, Petra’s mom attached, the little girl’s heartbreaking handwritten note — read above.

The foundation without hesitation decided to donate them the missing amount for the hospital care. And, it paid the full amount right away.

Despite the horrifying diagnosis she had received in Hungary, Petra walked out of the hospital in Brașov on two legs.

Today, she’s happy and excited to celebrate Christmas with her sibling and parents.
27
Sep 2016

Richie may soon walk without assistance

newsRichie is happily wearing his new TheraTogs system that helps him with assisted walking. Our organization has been providing this product for the little Hungarian boy for several years in partnership with our Hungarian sister nonprofit organization.

This was the third time we donated Richie this system, and he has improved immensely over the years. Richie's mom told us that with the help of this system, Richie is starting to walk without using a cane.

According to the product's website, the TheraTogs are designed to address different alignment and functional deviations of the knee joints, developing femurs, and hip joints with children as well as adults.

We are very happy to see Richie improve so much year after year, and see the happiness on his face as he's becoming more independent from any kinds of walking assistance.

We wish him the best, and we're here if he needs anything in the future.